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Headache Study - MoyaMoya Disease (Read 4654 times)
Lore
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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
Headache Study - MoyaMoya Disease
Jan 14th, 2010 at 7:54am
 
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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
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Mayhem
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diagnosed 1996

Posts: 92
Rochester, USA, NY, New_York
Gender: male
Re: Headache Study - MoyaMoya Disease
Reply #1 - Jan 15th, 2010 at 9:01pm
 
That's how I was diagnosed, because of headaches.
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yunnanababy
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My daughter had her surgeries
in October 2009

Posts: 137
Indianapolis, IN USA
Gender: female
Re: Headache Study - MoyaMoya Disease
Reply #2 - Jan 18th, 2010 at 2:44pm
 
Thanks for posting this Lore! 

Migraine-like headaches were my [Asian] daughter's first noticable MM symptom.  They started when she was 3.5, but it took 2.5 years, a CT Scan, 2 MRIs, 4 EEGs & multiple TIAs & strokes (all misdiagnosed as "seizures") before my prayers were answered when I read about MM, put the pieces together and brought it to her pedi neurologist to confirm or rule out.  In his infinite wisdom, the pedi neuro told me I was just an overly worried mom, but of course, I was right - she has MM.
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Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer!
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