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Surgeons in Australia with Moyamoya experience (Read 1083 times)
Sally S
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Surgeons in Australia with Moyamoya experience
Sep 9th, 2010 at 6:50am
 
My son has just been diagnosed with Moyamoya and I'm in a country with a very small pool of patients.  Does anyone know of surgeons in my country with experience in this or should I be looking internationally?
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Little Luca
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Re: Surgeons in Australia with Moyamoya experience
Reply #1 - Sep 9th, 2010 at 9:39am
 
Hey Sally

We were faced with a fairly similar situation being in South Africa. Lucky for you there have been a couple of Australians on here and the doctors name that keeps coming up is Prof. Stoodley in Sydney.

One is 'Briellesmum'. Here is a link to her profile, unfortunately there's no email address attached and she hasn't logged on for awhile:

http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?action=viewprofile;username=724259...

The other one I remember is 21widmoya. Her email address is sxc_chik182006@hotmail.com and here's the link to her profile:

http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?action=viewprofile;username=434850...

We weren't satisfied with the experience of any surgeons in South Africa and had Luca's surgery in the UK. If you do start looking internationally, drop me an email and I can maybe give you some pointers.

Best of luck. You'll get great support here if needed.

Stay strong
Mark (Luca's Dad)
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1st stroke in September 2008
Bi-lateral mm diagnosis
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Left side surgery in December 2008
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dmm
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Re: Surgeons in Australia with Moyamoya experience
Reply #2 - Sep 10th, 2010 at 4:17am
 
Hi, I live in Australia (Victoria) and my 18 y.o. daughter was diagnosed with Unilateral Moyamoya this year. She had STA-MCA bypass done last June. Think there might be more Moyamoya patients in Australia than we think. Send me a personal message with any questions. Would be happy to help, if I can.
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Emily
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Re: Surgeons in Australia with Moyamoya experience
Reply #3 - Sep 13th, 2010 at 5:29am
 
hi there, i'm 28 and was diagnosed with moyamoya 5 years ago. i had two direct bypasses in melbourne in 2005 and 2006.
my surgeon was mr laidlaw (through the royal melbourne hospital) he is excellent!
there are NO surgeons (or medical professionals at all) in queensland with any moyamoya experience. i know there is one in sydney but i can't remember the name. there is mr laidlaw in melbourne and also prof. stevens (experienced but not with direct bypasses). there is also a surgeon in perth i think.
there are a few people in australia with moyamoya but not very many, i'm fairly certain it's between 5 and 10.
i am more than happy to answer any questions/provide contact details etc.. i don't check this board very often but i'll look for replies to this topic or you can send me an email.
keep in touch!
emily
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dmm
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Re: Surgeons in Australia with Moyamoya experience
Reply #4 - Sep 13th, 2010 at 6:30am
 
Have to agree with Emily. My daughter Emily had Mr Laidlaw as her neurosurgeon last year at The Royal Melbourne Hospital. He was great.
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Mar
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Re: Surgeons in Australia with Moyamoya experience
Reply #5 - Sep 13th, 2010 at 10:29pm
 
Hi Sally, Welcome to our MM family.

Iíve heard wonderful things about the MM experience of Prof Marcus Stoodley, Sydney Australia.
Here is the link to the thread under
Surgeons with Bypass Experience
where Prof. Stoodley is recommended.
http://www.moyamoya.com/cgi-bin/yabb2/YaBB.pl?num=1181213093

Experience with this rare disease is very important, so itís good that youíre researching MM experienced neurosurgeons.† There is an enormous amount of info about MMD here on the website under links. My advice is always to learn all you can. Knowledge is power.

Keeping your son in my thoughts and prayers.

Mar
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RubyGilchrist
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Re: Surgeons in Australia with Moyamoya experience
Reply #6 - Oct 9th, 2019 at 4:59am
 
The same case happens with my friend he is also diagnosed with Moyamoya. He is working at http://www.resumesservicesreview.com/ online service but when he suffered from it he left the job. We all our friends help him in that bad time. If you guys any treatment advise about Moyamoya then please let me know.
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