gotchlorine
Old-Time Poster
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Our daughter, Tara, lives with MM
Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender:
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Hey everyone!
After seeing other people’s posts on other sites, I got to thinking about a special day for moyamoya disease and did some quick research. Here’s my thought process:
The earliest documentation describing a moyamoya-like condition (without it being formally named) was in the late 1950’s.
Moyamoya was named in the early 1960’s.
Dropping the numbers 1, 9, and the zeroes, leaves the numbers 5 and 6.
How about May 6th (5/6) as national moyamoya day? It’s impartial to anyone in particular’s surgery date, doctor or institution.
It'll likely take awhile for it to become a "national day", but if those of us amongst the moyamoya community start to recognize a specific day as "moyamoya day", I'm guessing that it'll likely be easier (in the future) for it to become a "national day".
I’m open to other suggestions, but thought I’d throw in my two cents. Having a "moyamoya day" (hopefully to become "national moyamoya day" in the future) would certainly assist in raising awareness for the disease.
Thoughts?
Much love, Tara M.
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