Hi My daughter was diagnoised with MM back in 1998 and she underwent 2 EDAS procedures and multi burr holes she was well after both although she suffers from cronic migrane and restless leg syndrone for which medication is given and after many years seems to control the pain.
We have now noticed the last two years she is starting to struggle with her speach and co ordination and extremley tired she has to go to bed for days on end  she has many anaflatic shocks which the cause is un known. Doctors in the UK are very much of the attitude once operations are done it fine and no furhter treatment needed. does anyone have any information of this happening to other MM suffers and has any one had any advice on checks many years after surgery.
My daughter is now 23 and struggles to be able to plan anything as she never knows how she is going to be day to day. Doctors seem to think this is down to medication but i feel deep down its something more. The UK have a very very small number of suffers

Hi, I had left & right bypass surgeries in 2007.  About a year ago I began to mix up words in a sentence occasionally.  My husband thought it was related to moyamoya.  About month ago, I was having more difficulty getting words from my brain to my mouth, getting my left/right and yes/no mixed up.  I called Stanford, they recommended I get an MRI and angiogram done.  They're looking for evidence of a stroke.  I will keep you posted...