kalise
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my son lives with moyamoya.
Posts: 36
westernaustralia, Australia, australia, 21, 203, WA, Western_Australia
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I first posted here when my then 15 month old Son had just been diagnosed with moyamoya. He is now 13 and a half years. We have been very lucky with Mitchell, other than executive function, Mitchell's strokes didnt leave too much noticeable damage. Our Neuro always told us, as Mitchell got older (teens), damage to the frontal lobes would become more evident in the form of anger, aggression, mood swings, behaviour etc. I am beginning to see all of the above and its breaking my heart. I KNOW this isnt my Son being defiant, there is a major difference between him having a "regular" teen freak out, and episodes I know he cant really control. Today his older Sister told me shes really worried about him. At times, its like Mitchell is a totally different kid to the one we know. I have shed god knows how many tears these last few days. Has anybody else been through any thing similar? Feeling really alone and helpless right now.
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