Welcome, Guest. Please Login or Register
Moyamoya.com
 
NEW search box below... Search Moyamoya.com with Google!
  HomeHelpSearchLoginRegisterEvent CalendarBirthday ListDonate  
 





Page Index Toggle Pages: 1
Send Topic Print
Indirect Bypass re-vascularization success stories (Read 1437 times)
Spacebass42
New Poster
*
Offline


I Love MM.com!

Posts: 12
Indirect Bypass re-vascularization success stories
Mar 14th, 2018 at 9:28am
 
Just would like to hear some people's experiences with re-vascularization after indirect bypass surgery for moyamoya if that's cool. I know my doctor said it could take months and it is different for everyone, but I would like to hear some real-life accounts. Did anyone have complications where they had to go back and get the direct bypass?
Any info would be much appreciated!
Thank you!
Back to top
  
 
IP Logged
 
SaraB
New Poster
*
Offline


I Love MM.com!

Posts: 8
Oregon
Gender: female
Re: Indirect Bypass re-vascularization success stories
Reply #1 - Mar 18th, 2018 at 12:36am
 
I had an indirect bypass 5 1/2 years ago and I'm doing well these days. I've had my 6 month and a 3 year check up so far and have been told my bypass is doing its job. I did end up with a direct bypass on my other side because I chose a different surgeon when the time came to need my right side done. I was still nervous and worried until my 3 year checkup but I figured that if it was working at that point, that I could relax and live my life.
Back to top
  
 
IP Logged
 
Spacebass42
New Poster
*
Offline


I Love MM.com!

Posts: 12
Re: Indirect Bypass re-vascularization success stories
Reply #2 - Mar 19th, 2018 at 10:47am
 
Thank you for the reply! At your 6 month check up, was there any revascularization going on yet? Glad to hear you are doing well!
Back to top
  
 
IP Logged
 
Sundress
New Poster
*
Offline


I Love MM.com!

Posts: 2
Re: Indirect Bypass re-vascularization success stories
Reply #3 - Mar 19th, 2018 at 10:11pm
 
Hi!

I had a left EDAMS done in December 2016 when I was 24. At my 6 month follow up (only MRI), I was told everything was stable and there was good flow however it was too early to see any newly formed vessels. My 1 year follow up angiogram is in a few months so hopefully, there has been some revascularization†Cheesy.

I had a really great experience and only needed 3 weeks to recover from my surgery. I am lucky to have never had a real stroke. It was caught somewhat early because my main complaints were horrible migraines and tingling in my arm. Although there were areas of stroke found on my MRIs, my doctors said I probably had silent strokes but thankfully don't have any deficits. I only had a TIA a month prior to my surgery but didn't act on it because I was still in denial about having moyamoya Shocked. My doctors told me I do need to be more serious about my symptoms but thankfully since the surgery, I haven't had any. I continue to get migraines but they are not as frequent and easily managed with my migraine meds.

I do have evidence of disease on my right side but not as severe as my left was. I am just waiting for my angiogram to see if it has progressed since and if there is an indication for surgery. I am still early on in my moyamoya journey but I'd be happy to answer any questions you have! Hope you have a speedy recovery Smiley.
Back to top
  
 
IP Logged
 
SaraB
New Poster
*
Offline


I Love MM.com!

Posts: 8
Oregon
Gender: female
Re: Indirect Bypass re-vascularization success stories
Reply #4 - Mar 22nd, 2018 at 10:49am
 
At my 6 month checkup they were pretty vague about whether it was working or not. They did say that things were stable and they didnít see any new signs of strokes. I know I felt hopeful after my 6 month checkup, but still nervous about my future. They did say the indirect revascularization process takes time. I had the EDAMS procedure at OHSU.
Back to top
  
 
IP Logged
 
Spacebass42
New Poster
*
Offline


I Love MM.com!

Posts: 12
Re: Indirect Bypass re-vascularization success stories
Reply #5 - Mar 23rd, 2018 at 9:00am
 
Was there a reason your different surgeon went with direct bypass the 2nd time around, SaraB?
Back to top
  
 
IP Logged
 
SaraB
New Poster
*
Offline


I Love MM.com!

Posts: 8
Oregon
Gender: female
Re: Indirect Bypass re-vascularization success stories
Reply #6 - Apr 2nd, 2018 at 1:18am
 
My husband did a lot of reasearch and decided that he would rather I go to Stanford for my second surgery (STA-MCA). He didnít feel like my first surgeon knew as much about Moyamoya as he had led us to believe.
Back to top
  
 
IP Logged
 
Spacebass42
New Poster
*
Offline


I Love MM.com!

Posts: 12
Re: Indirect Bypass re-vascularization success stories
Reply #7 - Apr 5th, 2018 at 12:28pm
 
Back in April 2017, I had my 1st stroke at 36 y/o. At the time, it was diagnosed cryptogenic stroke, meaning they really did not know why is happened. Also moyamoya was not detected, nor was it mentioned.

So I was told, lose weight, cut back on drinking alcohol, and stop smoking. And I did, I started hitting the gym, and did my best at dieting -† overall I lost 18 lbs in 7 months - not great but still a step in the right direction. I cut back on drinking - from 4 drinks a day to only weekends and cut back on smoking which I only did occasionally anyways.

In December 2017, Xmas eve, I had my 2nd stroke and was transferred to a different hospital since the one I was at still considered it cryptogenic. This time moyamoya was confirmed and surgery took place Feb. 2018.

I am concerned that since I have 2 strokes in 8 months if a direct bypass would be a better way to go than the indirect that I have already had on the left side. I have the right side to do still.
My Doctor, who is a very talented, kind, and is considered a specialist says that indirect would be best, but what do you all think?
I think its tough just holding on an hoping for the best after having the stroke cycle I've had
Back to top
  
 
IP Logged
 
willowz
New Poster
*
Offline


Hope Springs Eternal

Posts: 15
Re: Indirect Bypass re-vascularization success stories
Reply #8 - Apr 16th, 2018 at 4:18pm
 
My sister had a combination of direct and indirect bypass 2 years ago and is doing well. The surgeon felt combining the two techniques would give her better blood flow.
Back to top
  
 
IP Logged
 
willowz
New Poster
*
Offline


Hope Springs Eternal

Posts: 15
Re: Indirect Bypass re-vascularization success stories
Reply #9 - Oct 12th, 2018 at 6:38pm
 
update -my sister had an MRI and showed good revascularization on both sides. Her Dr. is soon to present her case at a conference.  Cool
Back to top
  
 
IP Logged
 
Spacebass42
New Poster
*
Offline


I Love MM.com!

Posts: 12
Re: Indirect Bypass re-vascularization success stories
Reply #10 - Oct 15th, 2018 at 10:41am
 
Thats great to hear willow! How old is your sister if you don't mind me asking? I'm curious if her age had any correlation with her recovery. Thanks
Back to top
  
 
IP Logged
 
Page Index Toggle Pages: 1
Send Topic Print



Moyamoya.com Forum » Powered by YaBB 2.4!
YaBB © 2000-2009. All Rights Reserved.


©2003-2018 Web Vision Enterprises LLC All Rights Reserved. All information on this site is protected by international copyright laws. You may not re-distribute any information from this site without written permission from Web Vision Enterprises LLC and the webmaster of this site. Violators will be prosecuted.

You may view our privacy policy and financial disclosure statement here





Valid RSS Valid XHTML Valid CSS Powered by Perl Source Forge