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Anyone live in Florida? (Read 7302 times)
Nathan
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10yr old with MM

Posts: 20
Ft. Myers, USA, usa, 469, 308, FL, Florida
Gender: male
Anyone live in Florida?
Mar 22nd, 2006 at 1:43pm
 
I live in Ft. Myers, FL. I would love to meet with anyone who actually knows about MM.

Saundra
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Moya Moya Survivors, You are an inspiration to all of those who know you.... an example of courage..... true heros.
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freckles
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Moyamoya Survivor!!

Posts: 86
Lakeland, FL
Gender: female
Re: Anyone live in Florida?
Reply #1 - Mar 29th, 2006 at 12:07pm
 
Hi Saundra,

My name is Jesenia and I live in Orlando while I'm in school and in Lakeland when I'm out or in Miami where I'm from...so basically I live all over Florida!! I would love to meet someone with moyamoya too. I am 19, but I would love to meet you and your son. Let me know what's up.

Jesenia
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JuliesMom
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Osteen, USA, usa, 466, 279, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #2 - Mar 29th, 2006 at 12:29pm
 
I was going to ask the same question!  My daughter Julie has MM and we live in Osteen which is 40 minutes NE of Orlando.  Julie wants to meet people around here that have gone through this since we are just starting the process.  Trying to decide which surgery is best  Smiley.  It would be great to hear from you.

Cheri
Julie's Mom
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Cheri aka JuliesMom
 
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tallyman31
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I love YaBB 1G - SP1!

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Tallahassee, USA, usa, 430, 259, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #3 - Aug 12th, 2006 at 11:25am
 
Hi my name is Daniel my daughter has moya moya and were from Tallahassee Florida i also would like to meet other People in this area my Daghter is 11 years old and had surgery at shands in gainsville florida back in 1997 i have questions and answers also.

                                              Thanks Daniel
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tallyman31  
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JuliesMom
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Osteen, USA, usa, 466, 279, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #4 - Aug 20th, 2006 at 11:23pm
 
Hi Daniel, I'm Cheri aka Julies Mom. She is being seen by Dr. Pincus at Shands right now.  We are deciding on a treatment for her.  Was your daughter treated by Dr. Pincus? How did you feel they treated her and you as parents?  Thanks for sharing.  Any info on Shands is appreciated.  We are a little unsure on Dr.s right now since we have seen so many.

Cheri


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Cheri aka JuliesMom
 
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neecieree
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sebring, USA, usa, 461, 283, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #5 - Aug 13th, 2008 at 8:54pm
 
hi my name is denise and I have been dx in April of 2001 and all of my doctors have given up hope and they have given me over to hope hospice and I recently talked to dr Steinberg's office today and they said they would take a look at my films.  But I would like to get together with anyone that is in Florida and would like to meet.  Please email me at neecieree@yahoo.com or post on the forum.
Thanks,
Denise[color=Purple][/color] Smiley
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denise
bobbitchinsgirl@myspace.com denise torsney neecieree  
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Shan
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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female
Re: Anyone live in Florida?
Reply #6 - Aug 14th, 2008 at 4:10pm
 
Aloha to my fellow MM Floridians  ;Grin
I'll be in the Fort Lauderdale area next week--if anybody is near and wants to get together...

Heard there are some "tropical storms" forming in the area, so I'm praying that we'll be blessed with good weather (no hurricanes)  Embarrassed  I heard this time of the year is known for hurricanes down there...

Aloha,
Shan
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"Love, Accept And Respect All Things And All Situations In Life They Are Especially&&Designed For Your Personal Learning" ~Howard Willis
 
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Carol Mae
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dx MM Mar 07

Posts: 27
Rockledge, USA, usa, 469, 278, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #7 - Aug 16th, 2008 at 11:40am
 
Hi all!   
  I'm from Rockledge Florida, and was diagnosed with MM in March of 07, had surgery in Stanford in May of 07 and am doing well.

Currently I'm in Washington State attending the MM reunion here, but will be back in Florida the end of this month, and will actually be in Tallahassee in Sept.

Daniel please let me know if you want to get together while I there. 

Saundra and Cheri, I would like to meet you too.  Just let me know when and where.

Freckles! long time no see! how are you doing?  I had a great time in Las Vegas and am now in Whidby Island all visiting other MMers!  But haven't even seen my own buddy in Florida in so long! 

How's school?  Give me a call just to catch up!

Take care all,
Carol
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Carol Mae
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hrsridermom
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mother of 19 yr old daughter
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Posts: 292
Tampa, USA, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #8 - Dec 18th, 2008 at 7:02am
 
Hi.  We live in Tampa.  My daughter Destin is 14 and will have her surgery on Monday, Dec 22.  Right now she only has to have the right side done.  Sounds like we'll be watching the left side from now on!  Maybe we could have a Florida reunion sometime.
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Destin's mom
 
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moody
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In all the thing I lost
I miss my mind the most.

Posts: 207
richmond, USA, VA, Virginia
Gender: female
Re: Anyone live in Florida?
Reply #9 - May 5th, 2009 at 2:20pm
 
Hi,

My family going to vacation on June, we stay at Ft Lauradale from June 14 to June 18 then to Orlando from 18 to June 23. I would love to see and talk to any of you who live near by, we might go out for lunch and talk. Please let me know.

Kieu
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Yesterday is past, tomorrow is future, today is the gift, that why we call it present.
 
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Cory
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I Love MM.com!

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Re: Anyone live in Florida?
Reply #10 - Oct 21st, 2010 at 2:38am
 
Hi all i live in Pensacola Florida i am 25 i was diagnosed when i was 17 i am completely up for talking to anyone about MM and i will try my best to help
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hrsridermom
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mother of 19 yr old daughter
with MMD

Posts: 292
Tampa, USA, FL, Florida
Gender: female
Re: Anyone live in Florida?
Reply #11 - Aug 1st, 2011 at 10:18pm
 

Hi Cory,  We moved to Tampa fro Pensacola.  We lived out in Grand Lagoon near Perdido Key for 14 yers.  Jeffrey, are you still in Australia?  It says you are relocating from Australia..Which area are you from. Visited Perth and Syndey...side trip to Yancep  Absolutely loved it!
Donna
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Destin's mom
 
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