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DJ

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LIVE MM Surgery Webcast with Dr. Scott!
May 25^th, 2010 at 12:29pm

Moyamoya.com family,

With special thanks to Dr. Scott and Mr. David Steger from Children's Hospital Boston, we have been invited to a ground breaking opportunity to watch a pial synangiosis surgery on a Moyamoya patient LIVE on the internet!

PLEASE show your support and visit the web address listed below and add your reminder to watch this incredible event.

Quote:

On Tuesday, June 8 at 10 a.m. EDT Children's Hospital Boston will broadcast a live Webcast of a pial synangiosis on a patient with Moyamoya disease. The procedure, pioneered by Children's Hospital Boston's Neurosurgeon-in-Chief Dr. Michael Scott, involves relocating a healthy blood vessel, the superficial temporal artery, from the scalp to the surface of the brain.

This one-hour Webcast is part of Children's ongoing effort to bring knowledge of advanced care and technology to specialists and referring physicians around the world, and to educate patients and families about the latest and most innovative medical treatments available.

To learn more or sign up for a reminder, visit: http://www.orlive.com/chb/videos/treating-moyamoya-disease

Hope to see you there!

DJ

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« Last Edit: May 25^th, 2010 at 12:33pm by DJ »

Adversity does not build character... it reveals it... I help my neighbor and my neighbor helps someone else. Life is a wonderful circle!

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DFior

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I Love MM.com!

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Re: LIVE MM Surgery Webcast with Dr. Scott!
Reply #1 - May 25^th, 2010 at 7:17pm

my grandaughter just had this surgery on both sides of her brain on 5/17/10 done by Drs. Smith and Scott at Boston Childrens Hospital. We are so grateful for these Drs and hospital. All of the medical personal were familiar with MoyaMoya which was reassuring. After recieving the dx in NY that left us scared we feel more confident that she will have a normal life. I'll be watching webcast on 6/8

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twin1 Junior Poster Offline My 16 year old twin and I both have MoyaMoya!! Posts: 51 Brookline, NH, USA, Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #2 - May 28^th, 2010 at 5:44pm I love Dr. Scott... he saved my life.. it will be really cool to watch the webcast and see what they preformed on me!!!
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lmaini

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Re: LIVE MM Surgery Webcast with Dr. Scott!
Reply #3 - Jun 7^th, 2010 at 11:34pm

Is the live web cast on tomorrow (6/8) at 9 or 10AM as I don't want to miss it. When I looked on the Boston website some places it says 9 AM and others say 10 AM. I'm excited to watch it tomorrow, and got coverage for my class to have the hour free to view it. Although my surgery was at Stanford, I'm assuming it'll be very similar, I'm also anxious to see what was done to me.

Thanks for the heads about this being on.

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STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #4 - Jun 8^th, 2010 at 8:49am If you click on the link above it says 10:00am... -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

STrantas MM.com Benefactor Offline MoyaMoya Survivor Since 2003 Posts: 1154 Philadelphia, USA, usa, 490, 122, PA, Pennsylvania Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #5 - Jun 8^th, 2010 at 10:08am Currently watching - this is amazing and fascinating! -Shari
Back to top	A smile is contagious...start an epidemic! Dr. Scott did my surgeries - 12/29/03 and 1/5/04 IP Logged

yunnanababy Experienced Poster Offline My daughter had her surgeries in October 2009 Posts: 137 Indianapolis, IN USA Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #6 - Jun 8^th, 2010 at 10:44am I agree...amazing, fascinating...and very emotional for me. My daughter is 8 months post-surgeries, but the tears are flowing as I consider anew the gift of life that Dr. Scott provided for my child.
Back to top	Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer! www.caringbridge.org/visit/rubymaejingli IP Logged

gotchlorine Old-Time Poster Offline Our daughter, Tara, lives with MM Posts: 776 San Jose, USA, usa, 24, 158, CA, California Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #7 - Jun 8^th, 2010 at 11:09am Loved, loved, loved seeing this! They did a FANTASTIC job! Jill
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Mar Ex Member	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #8 - Jun 8^th, 2010 at 11:16am OMG, it was the most emotional, and amazing experience I ever had. I’m speechless and in awe. Dr. Scott and his team are without a doubt, genius!! I’m so grateful I got to see that. For some reason I can't stop crying. It was fantastic! Mar
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mg12061

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Re: LIVE MM Surgery Webcast with Dr. Scott!
Reply #9 - Jun 8^th, 2010 at 12:26pm

Mar. you took the words right out of my mouth. It WAS emotoinal and exciting watching this live. My husband and I both watched. It brought back so many memories. What a wonderful tool for newly diagnosed patients. I'm also going to contact their new stroke clinic and try to set up an appointment for Kathleen to have a full multidisciplinary evaluation. I've bee trying to research some different options for kathleen's left arm and hand. There are soooo many new options from surgery to splints to help regain some use back. Dr. Scott by the way is the greatest! and boy is he calm and cool or what!!!!
Mary Grace

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Audge Experienced Poster Offline Daughter Emily has MM Posts: 107 Armada, USA, usa, MI, Michigan Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #10 - Jun 8^th, 2010 at 12:44pm I just watched most of the surgery with my daughter. WOW! So many things I wondered about and got to see live. It really brought back a lot of memories. She had her surgeries with Dr. Steinberg in California though. I really think this video will be great for newly diagnosed patients as well.
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yunnanababy

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My daughter had her surgeries
in October 2009

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Indianapolis, IN USA
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Re: LIVE MM Surgery Webcast with Dr. Scott!
Reply #11 - Jun 8^th, 2010 at 12:59pm

Yes, Dr, Scott is very calm & cool. My boss walked in my office while I was viewing, and he commented about how incredible it seemed to him that in the midst of this exceptionally delicate surgery, Dr. Scott was talking about it as though he were just having a chat with a friend. He also commented on how incredibly steady his hands were (thank goodness!).

We are so very blessed that Ruby's surgeon did a surgical fellowship at BCH so she learned from the very best!

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Mom to an 9.5 y/o ballerina/guitar player with MMD & an 11.5 y/o gymnast/cross country runner/swimmer!
www.caringbridge.org/visit/rubymaejingli

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LA Senior Poster Offline Moyamoya survivor since 1999! Posts: 334 Kneeland, USA, 15, 113, C Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #12 - Jun 8^th, 2010 at 2:48pm Incredible!
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lmaini

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Re: LIVE MM Surgery Webcast with Dr. Scott!
Reply #13 - Jun 8^th, 2010 at 11:03pm

It was so incredible, I loved it. I would love to share it with my family and friends. I wasn't sure how I would feel watching it, but it brought back some wonderful memories of some amazing people we were blessed to know in CA. It reminded me and proved what we all already know there is a God and we were touched by him whether it was through Dr. Scott or Dr. Steinberg and their amazing team of angels!
Good bless them for saving us all!

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tammy66 New Poster Offline I Love MM.com! Posts: 24 pittsburgh,pa Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #14 - Jun 9^th, 2010 at 10:44pm It was such a great thing to see, and emotional also. Very helpful and just seeing and hearing Dr. Scott and Dr. Smith made me feel thankful that we chose to travel to Boston for Amanda. They are angels, the whole team!!!! And to know they are so dedicated to their patients, is just awesome! Tammy
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twin1 Junior Poster Offline My 16 year old twin and I both have MoyaMoya!! Posts: 51 Brookline, NH, USA, Gender:	Re: LIVE MM Surgery Webcast with Dr. Scott! Reply #15 - Jun 14^th, 2010 at 3:57pm Watching that brought back all the memories that my sister and i share.. Dr scott and smith have changed my life...all the laughs and smiles i have shared with both of them is endless. they are the best..
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