Hi all,

I am a 27 year old woman, diagnosed with Moyamoya about a year and a half ago after having 3 strokes. I had unilateral STA-MCA bypass on the right side in February 2013 with the neurosurgery team at University of Miami. Surgery went well. I was having tingling everyday before surgery, and I had nothing for about 6 months, a TIA in June (nothing too bad just more scary than anything) and then I didn't have any symptoms for a long time.

Last week I had a bad TIA, with symptoms as strong as the stroke I had in the past. Plus I couldn't speak correctly, and bad facial drooping too, plus numbness and tingling, in my left side of my face and left hand (especially the pinky and ring fingers). I went to the hospital and the CT showed "there might be some stenosis of the bypass artery." Getting an angiogram on Monday morning to find out more.

I am scared. If it were symptoms on the other side I wouldn't be as upset about it, because I know that in all likelihood I will have to have surgery on the left side one day as well. But I didn't expect symptoms to come back on the same side, stronger than they have been since I had a stroke.

Has anyone else out there had this happen? Any ideas if they can/will want to do surgery on the same side again? Other treatment options?

I am already on asprin, verapamil (in an attempt to dilate my arteries) and zocor as a precaution.

I'm feeling rather hopeless at the moment; I really don't want to continue to have TIA and strokes, because I know I've been lucky so far in that I have regained my left side functioning, but that won't always be the case if we can't get this under control.

Thanks for any info!