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11 months post surgery and symptoms are back (Read 165 times)
marilyn liddell
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11 months post surgery and symptoms are back
Jun 1st, 2018 at 1:02am
 
Hi all,

I am a 27 year old woman, diagnosed with Moyamoya about a year and a half ago after having 3 strokes. I had unilateral STA-MCA bypass on the right side in February 2013 with the neurosurgery team at University of Miami. Surgery went well. I was having tingling everyday before surgery, and I had nothing for about 6 months, a TIA in June (nothing too bad just more scary than anything) and then I didn't have any symptoms for a long time.

Last week I had a bad TIA, with symptoms as strong as the stroke I had in the past. Plus I couldn't speak correctly, and bad facial drooping too, plus numbness and tingling, in my left side of my face and left hand (especially the pinky and ring fingers). I went to the hospital and the CT showed "there might be some stenosis of the bypass artery." Getting an angiogram on Monday morning to find out more.

I am scared. If it were symptoms on the other side I wouldn't be as upset about it, because I know that in all likelihood I will have to have surgery on the left side one day as well. But I didn't expect symptoms to come back on the same side, stronger than they have been since I had a stroke.

Has anyone else out there had this happen? Any ideas if they can/will want to do surgery on the same side again? Other treatment options?

I am already on asprin, verapamil (in an attempt to dilate my arteries) and zocor as a precaution.

I'm feeling rather hopeless at the moment; I really don't want to continue to have TIA and strokes, because I know I've been lucky so far in that I have regained my left side functioning, but that won't always be the case if we can't get this under control.

Thanks for any info!
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SaraB
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Re: 11 months post surgery and symptoms are back
Reply #1 - Jun 1st, 2018 at 2:27am
 
I am sorry to hear that you are having such scary symptoms again after a successful bypass! I rarely get symptoms that send me into a panic but it happens about once a year. I don't know that mine have been as severe as yours but it's always been a false alarm so far. I used to rush to the emergency room but they could sometimes make my panic worse because they don't have a good understanding of Moyamoya. I don't know if you've seen someone experienced with this disease since your recent episode, but if not you should definitely speak with your neurosurgeon.

My episodes are usually caused by a "perfect storm" of things combined. Like if I'm getting sick and don't realize it, or if I've been really upset about something, or mentally exhausted from being at a loud, crowded party, or working out in the heat all day... I'm six years post surgeries and I did suffer multiple strokes before being diagnosed. I really hope that this was just a false alarm for you and that your bypass is still working as it should.
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