DJ called me from Denver on his way home.  He gave me Diane's cell phone number, so I will try to call her and maybe visit before they go home at the end of the month.  (With a 3-month old, I don't really get to dictate my own schedule too much, so we'll see . . . . . )

Mom, you must be so proud of DJ for how he has taken an illness (that some might let get them down) and used it instead to support and inform people all over the world.  I am really impressed with him for coming all the way out to California just to be here for Christy and Diane.  And posting the pictures makes us all breathe a sigh of relief, whether for ourselves or our loved ones.  I myself wish someone could send me some pictures of my sister, 3000 miles away, after her surgery from which she just emerged a few hours ago.

You raised your boy right!

Diane Main
San Jose, CA

Dear Everyone,
             Well another day has gone by and we are making progress. Christy's face  and eye were some what worse today but she is handling it alright. I got her up and walking today, she made 6 rounds on the indoor track as she calls it, so they stopped her heprine, her eye looks pretty bad today and alot more bruising around her face but Dr Steinberg said that is normal due to the blood thinners. She had a small TIA attack this afternoon but didnt last long and was only in her hand, she is fine from it. She is still in good spirits but very tired. She is eating pretty good and is so wanting to wash her hair,lol. Not really but she is good. We are looking forward to getting her out on sunday and just spending a couple of days resting. Dj was and is a great guy,  ;, it was so good to have him here for Christy and for me also.  I am trying to keep her up to date on all the replys on here and all  the emails too. We cant put any more pics on right now as i dont have the cords to hook up to this computer and DJ had to return home,but will have lots when we get home and will get DJ to get them on line. She said to tell everyone hello and thank you for all your love and concern. She isnt much into wanting to talk on phone right now, but wants everyone to know she thanks you for your love and prayers and messages you have been sending. Me also, I couldnt never thank you all enough for all you are all doing, and to DJ who had a great shoulder for me to cry on. Well gonna close for tonight, will update you more tomorrow.

Thanks and Love and Prayers to all
Diane and Christy and Johnny

p.s. dj NOOOOOOOOOO CAPSSSSSSSSSSS lol

, Well we have had a little setback, about midnight last night i got called back to the hospital as Christy had a seizure. They took her and got a ct scan, which showed nothing so that was good. It is actually really normal to have seizures after any type brain surgery. They moved her to a kinda little icu room so there is a nurse with her all the time, they are being great about letting me and Johnny come in to see her. Needless to say I havent left the hosptial again.I will go and take a shower later and stay the night again. Johnny and I are going to take turns staying here as not to wear ourselves out. But she is good, really sleepy as they put her on anti seizure medication, they changed it because the first one she had a reaction to. but she is doing much better now. Will update later this afternoon.

Love and Prayers to all
DIANE, CHRISTY AND JOHNNY

Hi Diane, Christy and Johnny,

Thanks for the updates.  Glad to know they didn't see anything bad on the CT scan.  What's the difference between a "seizure" and a "TIA" ? My neurologist kept telling me what I was having were seizures (and put me on Keppra), but the more I hear about TIAs , the more I think what I had were TIAs.  I guess he just has confused me about all of it

Please let Christy know (if you haven't yet) that I'm genuinely concerned about her (even though we've never actually met).  When I hear she's had a setback, it makes me sad   

Diane, you and Johnny are really troopers in every sense of the word.  Maybe we can talk sometime.  My Mom told me she'd love to know all the details from an expert, and I think you're awfully close to qualifying at this point.  I just want to know stuff like when I can wash my hair and how I'm going to be able to see without my glasses!

Do you think Dr. S will still perform the right side surgery next week - or is it still too early to tell?

If Christy's eyes stay black too long, she can always wear shades 8)...wait, that won't work, because of the incision(s)!  Sometimes you just can't win, can ya?  My surgeries haven't been scheduled yet, so I'm going to check back w/Emory on Monday because I keep having increasingly irritating dizzy spells , and I'm thinking the sooner the surgery, the better.

If your not too tired, and you deserve to be , please keep updating all of us out here in MM land.

Many many thanks,
Kris

Thanks so much for the updates Diane...we're all a wreck here worrying and they're so comforting. Please give Christy a big hug and tell her how proud we are of her...What a trooper!! You go girl!!!
Take care of you too Diane

God bless,
Mar

Just wanted everyone to know, I talked to Diane tonight.  Christy was released from the hospital today and was able to go back to the hotel.  She's doing good, just tired from the medication so she's sleeping most of the time.

I was able to get her to giggle with an inside joke on the phone, so I know she's ok... lol

Keep her, Diane and Johnny in your thoughts and prayers this week as Christy will have her second surgery this coming Wednesday!

My prayers are still with you.  You at least got out of the hospital for a little while.  Keep the spirits up!

Paula

You go Christy show us your stuff we know you can pull through this one just as easy, keep up the good work.
We'll be waiting to here from you. Hugs and prayers to you and your family.
                                      Nancy

Hello all,

Those are lovely pictures.  DJ, you are a wonderful person for being so supportive.  I don't know too many people who would do that.  How nice it must have been to experience this with soemone who has been there, just like family.  Alice
By the way, Christy you are a beaugtiful girl and I am glad you are okay.

Hi Christy and Diane----PatM here.  Christy you are a beautiful girl and so brave.....I really look forward to meeting you and Diane this August.....Sorry I did not get to write sooner, but I just had my first EDAS surgery on April 16th.  The black eye wasn't as black as yours, but my right eye was swollen completely shut (with the bandage on my head and my swollen eye, I looked like a combination of Sponge Bob/Quasimodo).  Know that our thoughts and prayers continue to be with you and that we are all rooting for your speedy recovery.....God Bless you, your family, Johnny and DJ for being with you....and remember to pray for Jared, who has Down's syndrome and is having his surgery on
April 30th at NY Presbyterian Hospital.  He has an MRI on the 29th (I get my staples and stitches removed from my head that day---so I hope to be meeting Donna, Jared's mom, and some of his sisters at the hospital that day.)  Be well, with lots of love and prayers from your moyamoya family, PatM

Hi Diane, Christy and Johnny

Glad to hear the good news.  I know it was a long day for you and also as long for us waiting for news. 

We will  keep you in our prayers and I asm sure that you will be home soon.

Diane - we should be hearing something soon about taking Patty back to Clearwater.  I will keep you informed.

Janice 

.   

Way ta go Christy!

So glad the second surgery went as well as the first!! Now, ...on with getting stronger and carrying on a normal life. Another success storty in our mm family. Thanks be to God!

Diane and Johnny... You're the greatest support team!! Now you can relax.

Group Hug!