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DR. SUESS ON MOYAMOYA DISEASE (Read 5851 times)
Lore
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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
DR. SUESS ON MOYAMOYA DISEASE
Sep 11th, 2005 at 7:17pm
 
To Kevin (Cubbie) from your sister Lore.

"It came one day!
It will not stay!
Moyamoya will not wreck my day!"

"I will not deal with moyamoya today!
So will you kindly go away?"

"But moyamoya is here to stay!
You cannot make it go away!
The days go by.
Sometimes I wan to cry.
But moyamoya will not rule this guy!
Moyamoya came one day!
You will make it go away!"

"I will not let moyamoya wreck my day!
I will ignore it anyway!
I will not let it rule this guy!
And Mr. I will tell you why!
Because we live in modern day
they can fix this moyamoya today!"

"They cannot fix it on a dime.
This is sad, it's a crime!
Here it comes!
That puff of smoke!
You must prepare not to stroke!"

"I will not let moyamoya wreck my day!
Prepare for what? No how no way!
Moyamoya will not wreck my day!
I will surely try
cause moyamoya will not rule this guy!
Blood pressure will not rise!
No one will die!
Mr. take this moyamoya today
and please do go away!"

"I worn you now of moyamoya today.
The blood flow will go and off it'll stay!
You will not get good news by mail!
Your neuro system will surely fail!
Moyamoya is here today.
Listen Up! Attention pay!"

"I will not let moyamoya wreck my day!
I will not now so go away!
Moyamoya will not wreck my day!
I will surely try
cause moyamoya will not rule this guy!
I'm on a cure for moyamoya high!
Moyamoya bye bye!"

"All blood flow will be restored.
Moyamoya will no longer be ignored!
Speech and movement won't be gone.
My neuro system will be on.
I will receive good news by mail.
My blood flow will not fail.
Why talk about this moyamoya today?
Where'd you get this nonsense anyway?
Have you talked with DJ?"

"Moyamoya is here today!
It will not be the Judgment Day!
These facts are good. I know it's so!
I read it in the NY Times you know!
They say the etiology is unknown.
Genetic factors may make one prone.
We want a cure.
We'll fight to be heard!
It will surely be a task!
Those not prepared to find a cure can kiss my...Big Toe!

"You are looney moyamoya I say!
Give it up and go away!
The blood will flow.
My neuro system will be a go.
Now what is that?
You've occluded my brain?
Do you think you could refrain?"

"I hired a moyamoya specialist today!
I'm preapred to defy you moyamoya, eh?
You just don't get it moyamoya.
Narrowing carotids will stop!
Everyone will be a cop.
When moyamoya hits you're not on you own!
I'm storing brain food at home!
So listen close "bout moyamoya today.
Get ready! I'm on top of it I say!"

"I will not let moyamoya wreck my day!
Be gone moyamoya you fool! Be on your way!
You won't cause me to lose my mind!
Dr. Steinberg fixed you moyamoya just in time!
An STA-MCA and I'm good to go!
Real good blood flow you know!
So give it up
Moyamoya you freak!
You're not sending me up a creek!
Come on, really. Okay?
Get over it moyamoya I'm living today!"

"Call me a dreamer. Okay?
Oh friend listen up today!
Some neurologist may be clueless.
But we won't let moyamoya be ruthless!
With a cure we can last.
The carotids will not close fast.
No stopping the narrowing of carotids? I'm bummed!
A sitting duck we will become!
And all of this cause of moyamoya, I say!
Tell moyamoya now get on your way!"

"I will not let moyamoya wreck my day!
I'll sigh at you and simply say.
Nothing could be so bold.
This moyamoya is getting old!"

"If RNAi could wipe it out
now that thought makes me shout!
No moyamoya? Not bad I say!
And all because of RNA?
So my moyamoya looney friend
this moyamoya will not end
life as we know it, don't you see?
Now will you please stop bugging me?"

"So you see this moyamoya today
doesn't have to affect your life in a negative way!
Part of your carotids soon will go
to research scientist who are working so
all moyamoya victims can live
for guys like me who are active!
We are ready. We have no fear
that someday soon moyamoya will disappear!"

"I will not let moyamoya wreck my day!
I will not, so go on your way!
I've told you I don't believe!
No cure? I cannot conceive!
Researchers won't let it go!
They're right on this, I know I know!
Blood will flow, arteries will change
keep that thought. Stop acting strange!"

"Now I'll go to bed.
Moyamoya is no longer in my head.
Tomorrow's another day.
I've sent moyamoya on it's way!"   

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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
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gotchlorine
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Our daughter, Tara, lives
with MM

Posts: 776
San Jose, USA, usa, 24, 158, CA, California
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #1 - Sep 11th, 2005 at 8:09pm
 
Lore,

I'm speechless . . . a condition that doesn't happen very often with me!!!!!!  Way to go, girl - your "story" is incredible, and absolutely makes me laugh until I cry!

Lots of love,
Jill
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sca4gold2002  
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Mar
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Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #2 - Sep 11th, 2005 at 8:25pm
 
Clever! Smiley I loved it!!

Thanks for sharing that part of you with us my friend.  Smiley You made my heart smile.

Mar
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Shan
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MM Survivor ~ May 27,
2005

Posts: 849
Honolulu, USA, usa, 376, 346, HI, Hawaii
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #3 - Sep 11th, 2005 at 8:46pm
 
Lore,

Wow! Unbelievable!  Wink  You have been blessed with an amazing talent... Kevin is also very blessed to have you!  Cheesy

Take care,
Shan

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"Love, Accept And Respect All Things And All Situations In Life They Are Especially&&Designed For Your Personal Learning" ~Howard Willis
 
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Chelsie
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Posts: 127
Columbus, USA, usa, 418, 135, OH, Ohio
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #4 - Sep 11th, 2005 at 9:10pm
 
Too cute, Lore!!!  I see a bright future for you in writing!!
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cubbie
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Stanford MM Survivor,May
2005

Posts: 168
Delaware, USA, usa, 418, 133, OH, Ohio
Gender: male
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #5 - Sep 11th, 2005 at 10:55pm
 
If you godown Godown Road that is were I read it.
That is were we grew up !
Charlie and Donna thought it was great!
If Mom,Dad,and Vaughn could read it!

Thank You,Your only Bro.
Cubbie

P.S. Chelsie you Should Know Where Godown Rd Is!
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« Last Edit: Sep 11th, 2005 at 11:06pm by cubbie »  

Kevin Allen- I was so much older than,I am younger than that now,The Byrds,My Back Pages
 
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Seachelles
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God never gives us more
than we can handle.

Posts: 681
Fredericksburg, USA, usa, 474, 157, VA, Virginia
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #6 - Sep 12th, 2005 at 10:44am
 
ABSOLUTELY BRILLIANT!!!!!!!!!! Lore....you are a remarkable woman and I'm so glad I was able to meet you at Stanford! 

Peace, love and continued prayers always....
Michelle
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Michelle
Chelles4U Chelles4U  
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tiomasai
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Arriba Arriba!

Posts: 246
Douglaston, USA, usa, 504, 106, NY, New_York
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #7 - Sep 12th, 2005 at 2:57pm
 
Lore:

You are truly amazing...and the talent clearly runs within the family!  Kevin, loved your reply poem as well. 

Trina
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tiomasai  
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itsme
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I love YaBB 1G - SP1!

Posts: 125
aliso viejo, USA, CA, California
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #8 - Sep 12th, 2005 at 11:31pm
 
One word WOW!

Bring it on! That was EXCELLENT!

LOL,
itsme
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riosdallas
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Life is an Opportunity
That we benefit from

Posts: 63
Templeton, USA, usa, 510, 83, MA, Massachusetts
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #9 - Sep 13th, 2005 at 9:18am
 
Great JOB!!!!
It put a smile on my face. You definatetly have some talent!!!
                       MM friend Lena
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Rena
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Hi, My son Tyler was diagnosed
with MM in 2003

Posts: 467
, Colorado, USA
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #10 - Sep 13th, 2005 at 9:37pm
 
WHEW! That was as hard to read out loud as Dr. Suess. It has the same rush to read, because of high energy in it.

But Tyler and I both LOVED it!

Way to Go!
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I've learned to never underestimate the impossible. -Blake Sheldon-&&There are no failures, just options tried. -Thomas Edison-&&
http://www.facebook.com/wldrtst?v=wall&story_fbid= oneofakindco  
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debs
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Delafield, USA, usa, 358, 107, WI, Wisconsin
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Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #11 - Sep 14th, 2005 at 3:09pm
 
Lore,
Simply outstanding!!!  I felt every word right down to my very soul!!!  Thanks for sharing your gift~~  May I copy it to share with my physiatrist & stroke club?  debs
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Lore
MM.com Benefactor
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My brother Kevin (Cubbie)
has Moyamoya

Posts: 819
Delaware, USA, usa, 419, 133, OH, Ohio
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #12 - Sep 14th, 2005 at 9:45pm
 
Hi All!

I'm glad you enjoyed Dr. Suess and his take on moyamoya disease and hope you enjoyed it as much as I did writing it. I know Kevin really enjoyed it!

My intent was to "lift spirts" by sharing the "lighter side" of life even with moyamoya disease. I believe we must always have hope. I also believe that "laughter sets the spirit free" and it can be very therapuetic.

I have always liked Dr. Suess stories from the time I was a child and love rhyming words. I'm also a very upbeat individual. According to some, just plain silly. lol  Smiley So writing this seemed very natural for me.  Of course, the credit must go to Dr. Suess for his inspiration and way of telling a stories.  Smiley

I believe "one can get busy living" or "one can get busy dying".  It's a choice for all with chronic conditions and/or diseases.  By the way, that saying came from the movie Shawshank Redemption, one of my favorite movies. I actually thought Morgan Freeman was talking to me when he said that line in the movie!  Smiley 

When I was going through surgery and treatment 7 years ago for kidney cancer (and you all thought I was simply a caregiver to a brother with moyamoya) lol  Smiley - I remember receiving get well cards and many were actually depressing!  Smiley Then I received a very funny get well card from a friend and laughed histerically for what seemed like days.  Smiley I will never forget how good it felt to laugh and to realize just how short life is and  how important it is to live each day to the fullest and not be consumed with my disease. "Don't worry, be happy!" Now where have we heard that? lol  Smiley I'm very happy to report I am cancer free today.  See, there is hope! Don't ever forget it.  Smiley   

Well enough preaching! ( I know, you're are not a priest and this is not a confessional) lol  Smiley

By the way, I promise to keep my daytime job. lol  Smiley

Deb, and anyone who would like, please feel free to share Dr. Suess on moyamoya.  Just have fun with it.  Smiley

Hugs and God Bless All,  Smiley

Lore    



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"What lies behind us and what lies before us are tiny matters compared to what lies within us." - Ralph Waldo Emerson
 
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katden
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My son, Brian is a MM
survivor!!!!!

Posts: 58
Phoenix, USA, usa, 123, 219, AZ, Arizona
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #13 - Sep 15th, 2005 at 12:25am
 
What a joyful poem to read before bed. Thanks for giving us yet another reason to smile Smiley

Warm wishes..............Kathy, Dennis and Brian
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KathyVM
 
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babyblue
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Diagnosed 2003

Posts: 306
kennesaw, USA, usa, 417, 219, GA, Georgia
Gender: female
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #14 - Sep 18th, 2005 at 12:42pm
 
Lore- that was awesome i loved it. you go girl!!!

Christy
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"Life is not a desination, but a journey!"
 
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cubbie
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Stanford MM Survivor,May
2005

Posts: 168
Delaware, USA, usa, 418, 133, OH, Ohio
Gender: male
Re: DR. SUESS ON MOYAMOYA DISEASE
Reply #15 - May 5th, 2014 at 8:47pm
 
WOW I forgot that almost 9 years ago!!

Kevin AKA cubbie Cheesy
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Kevin Allen- I was so much older than,I am younger than that now,The Byrds,My Back Pages
 
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