PatM
Experienced Poster
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Posts: 229
Woodcliff Lake, USA, usa, 498, 109, NJ, New_Jersey
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Hi Christy, Diane, Johnny and all---
Glad to hear that all is progressing well and we all hope and pray that you are home soon. I am so looking forward to meeting you all in August. You are some terrific people. The party is shaping up to be really big. The New York Metro Mass Choir will probably be performing(90% sure). I have their CD and it is just wonderful. My husband works with the husband of one of the choir members and we are going to see them at Avery Fisher Hall at Lincoln Center on Friday, May 14th. They are fabulous.......I know you will really enjoy them. You can check out their website. Also, spoke to our lawyer today about "The Moyamoya Foundation---Helping Hands, Caring Hearts", a 501(c) (3) tax exempt charitable foundation. (Hope you all like the name). So, glad to hear that you are dong well; by the way, Kris, I still have the staples in the right side of my head (about 7 inches worth) and Dr. Connolly showed me how to carefully wash the right side. Staples will come out this Thursday. I will be at the hospital with Donna and Jared on Thursday, when he has his angiogram and MRI, and on Friday, April 30th, when Dr. Connolly performs the surgery. DJ is an inspiration; if he can do it, so can I. They are so anxious and frightened, especially since Jared has Down's syndrome. They are brave people, like all of you. DJ---Could you please help me and post this in a new topic----about the Moyamoya Foundation, etc. I want to keep people informed. The lawyer's name is Tom Wroebel and he is in San Francisco, California.....my girlfriend who is an attorney with the IRS will contact people in the tax exempt status section and speed us through the process....I am fronting all the costs, so anybody who wants to know about this can either post something on the new topic or e-mail be directly......By August 29th, we will be up and running.......Love to you all, Pat M
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